Consent

Pillow writers is a peer group of writers who have ME/CFS and/or Long Covid. Internet privacy is important to us and we will never share personal information collected by us with any other organisation. We will only disclose your Personal Information if required to do so by law. We only collect personal information when you sign up to receive our emails. You may opt out at any time by clicking the unsubscribe button at the end of any email.

By voluntarily providing us with Personal Information you are consenting to our use of it in accordance with this Privacy Policy.

How we use the information:

Personal Information is used to send you email reminders for the groups you are interested in and occasionally email updates with relevant or interesting information.

Non-personal information such as statistics may be used to improve the quality of our service.

Storage

Both personal and non-personal information may be stored by Pillow Writers or on our mailing service – currently Mailer Lite – please see their Privacy Statement in relation to information stored on their site.

Security

By signing up to our email you agree to abide by our confidentiality agreement, including never to share via email or any other means another person’s work without their express written permission.

No internet or email transmission is ever fully secure or error free, you should take care when deciding what information you share with us via email. 

We do share the work we read at meetings with each other following these meeting. The group which receives these emails is a manually managed group, based primarily on regular attendance at meetings. We do this so that we have access to each other’s emails and may contact each other freely. Any new participant at a meeting may be added if they wish to the follow up email for that meeting and may be removed if they are not attending for the following couple of weeks. We fully recognise that with our illness attendance cannot be guaranteed and may be sporadic. You can request re-instatement on this manually managed list at any time by emailing any of the hosts.

Links

If we provide links to other websites not operated or controlled by us this Privacy Policy does not apply and you should check the Privacy Policy of the particular website.

Updating this policy

Pillow Wrtiers reserves the right to change this Privacy Policy at any time without prior notice. Please review our policy from time to time. The most recent update is as of the date below.

Updated UH:  04.05.24