I did not help sound the alarm at the beginning of a pandemic so that millions more would become disabled globally by ME/CFS.
I did not advocate for ME/CFS funding and research so the name could be changed once again and billions of dollars would go to reinventing the scientific wheel.
I did not work on DEI issues and ADA plans so that disabled individuals would continue to be excluded and plans would sit on shelves unfunded.
I will continue to advocate for treatments and a cure for the Millions Missing globally from ME/CFS.
I will continue to fight for disability justice and request accommodations for my ME/CFS as I do.
Just for the record, I am keeping my seat at the table.
Cynthia Rae Johnson (#pwMEcfs since 2009)
January 25, 2023